An update from CHEST

This evening I talked to Donna, and Nancy posted to the list. It sounds like CHEST is going very well. This morning Nancy and Donna gave a presentation about HPS to the local services for the blind office – three people at the talk seemed to have HPS symptoms and will now be tested. We hope they test negative, but if not, we’re glad we found them.

Dr. Markello presented data from the HPS natural history study about the lung disease of HPS – pulmonary fibrosis – and everyone says his talk went very well and was very well received.

So far, it sounds like the conference has been a success.

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Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for

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Help for one of our newest HPS friends

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Living on the frontlines

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