Skip to main content

The note from Jose in Spanish

Tengo buenas noticias que compartir a pesar de los inconvenientes experimentados en los vuelos de/para San Juan-Puerto Rico.United Airlines ha restablecido sus vuelos sin escala que han estado utilizando nuestros pacientes. Así que por el momento ya no van haber los problemas que estuvieron experimentando nuestros pacientes en el mes de octubre debido a retrasos por escalas en Miami. (Esto fue debido a que tuvimos que cambiar nuestros pacientes a American Airlines debido a los inconvenientes que estaba confrontando United Airlines)De otra parte esto también aliviara cualquier problema de oxigeno ya previsto, de los cuales iban a presentarse bastantes, aunque solo se viera envuelto un paciente!!!! Debido a que cualquier paciente que sufra el retraso de su vuelo (en cualquier aeropuerto), limitara su accesibilidad a un suministrador de oxigeno y la renta de un equipo como este se encuentra cerca de los $300.00 por hora. Lo que ascendería a $600.00 ida y vuelta por un retraso de vuelo en Miami. Sin mencionar todo el papeleo y el tiempo invertido en el tramite en cada visita que realice el paciente. Nuestra esperanza es que United Airlines continúe ofreciendo vuelos directos sin escala durante todo el año el 2009; aunque nuestro agente experto de viajes (Earlene Little) me explico que las agencias de viajes pueden cambiar sus vuelos en la forma que lo deseen.

José Salas
Coordinador de Cuidado de Pacientes
Instituto Nacional de Investigación del Genoma Humano
Labels:

Comments

Post a Comment

Popular posts from this blog

Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for...
1 comment
Read more

Some good news about Pirfenidone

Below is a press release from Intermune, the company that makes Pirfenidone. They have essentially reviewed the various clinical trials going on, and decided that Pirfenidone is safe and well tolerated. That would pretty much go along with what we've observed in the HPS community as well. We have a few folks that have been on the drug since the late 90s and continue to do well. Of course, as a journalist, I do have to say consider the source - but at the same time, as someone in a Pirfenidone trial, it's good to know. Results of Comprehensive Safety Analysis of pirfenidone In IPF Patients Presented At European Respiratory Meeting - Analysis shows safety and tolerability of pirfenidone across four clinical trials - VIENNA, Sept. 14 /PRNewswire-FirstCall/ -- InterMune, Inc. (Nasdaq: ITMN ) today announced that the results of a comprehensive review of safety data from four clinical studies were presented at the 2009 European Respiratory Society Annual Congress in Vienna, Austria...
Post a Comment
Read more

The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.
Post a Comment
Read more