This next week the HPS Network will be undertaking a major outreach initiative in the Philadelphia area. The Network will have a booth on the show floor at CHEST – the meeting of the American College of Chest Physicians, Oct. 25 = 28, 2008. Booth staff will work to answer questions from physicians about Hermansky-Pudlak Syndrome as well as generate awareness among the event’s attendees.
The HPS Network will also be speaking at a number of Philadelphia area social service agencies serving the blind and hospitals to generate greater awareness of HPS among social workers, clients and medical staff that are most likely to encounter patients with HPS.
Anyone who would like to arrange an educational session for their group, or would like to arrange to speak with representatives of the HPS Network in person, should contact the Network’s national office at 1 (800) 789-9HPS. The Network will be in the Philadelphia area again in November for a national genetics conference.
Several researchers from the National Human Genome Research Institute will also be presenting research data on Hermansky-Pudlak Syndrome and pulmonary fibrosis at the CHEST conference.