Skip to main content

Friends of the NIH Clinical Center

Today I recieved this e-mail from Friends of the Clinical Center - a non-profit that tries to help patients at the Clinical Center at NIH with unexpected issues that come up and can't be paid for by the usual government funding. They need some help this weekend - I know several readers are local to the area - if anyone has free time and thinks they could help, here's the info and contact.

Hello dear FOCC Volunteers,

We are having the Bethesda Row Arts Festival this coming weekend – Sat. Oct. 18 and Sunday Oct. 19th.

I am looking for a few volunteers to come help run the Spin art table. It is quite fun and raises money for our charities.


Please let me know if you can come by for a couple of hours either day. The hours are 10:30 am – to help set-up-to 6pm. I will be there to guide you through the activity.

Look forward to seeing you!

Heidi



Heidi S. Grolig
Executive Director
Friends of The Clinical Center,
NIH Charities
Office: 301-402-0193
Mobile: 301-938-4777
Fax: 301-480-4417
E-mail: groligh@mail.nih.gov

Comments

Popular posts from this blog

Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for...

Some good news about Pirfenidone

Below is a press release from Intermune, the company that makes Pirfenidone. They have essentially reviewed the various clinical trials going on, and decided that Pirfenidone is safe and well tolerated. That would pretty much go along with what we've observed in the HPS community as well. We have a few folks that have been on the drug since the late 90s and continue to do well. Of course, as a journalist, I do have to say consider the source - but at the same time, as someone in a Pirfenidone trial, it's good to know. Results of Comprehensive Safety Analysis of pirfenidone In IPF Patients Presented At European Respiratory Meeting - Analysis shows safety and tolerability of pirfenidone across four clinical trials - VIENNA, Sept. 14 /PRNewswire-FirstCall/ -- InterMune, Inc. (Nasdaq: ITMN ) today announced that the results of a comprehensive review of safety data from four clinical studies were presented at the 2009 European Respiratory Society Annual Congress in Vienna, Austria...

The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.