Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
I'm sorry to hear that the D.C. job didn't work out. Back in March I was there for a few days for a conference and loved the city. I'm heading out of town again at the end of this week, but we need to catch up soon. What's the best way to contact you, by the way? My e-mails don't seem to go through most of the time.
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