Hundred People Search update

This week we added one new person to the HPS patient registry, so we’re now at 86 for the Hundred People Search countdown. There are three potential HPS’ers we’re sort of “processing” right now that I think will end up being positive, but I don’t want to count anyone until they’re “official.”

We also have a new family I should have mentioned last week. They’re negative for HPS, but seem to be rather “HPSish.” In other words, they don’t meet the current definition of HPS, but we welcome and include them, just as we do with the Chediak-Higashi families, because they have so many similar issues and no where else to “fit in” and get support.

Should these families choose to participate in research, they also might yield some clues that will eventually help with the bigger picture.

But we’ll let the doctors sort out what’s related and what’s just pure coincidence. We’ll just try our best to keep supporting the people who would benefit.

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Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for

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Help for one of our newest HPS friends

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Living on the frontlines

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