Monday, July 21, 2008
The Massachusetts gang outreaches for HPS
A big kudos to the gang in Massachusetts for their efforts this past weekend to get the word out about Hermansky-Pudlak Syndrome. They braved the heat and humidity (and it was a scorcher) to attend the Puerto Rican Festival in Holyoke, Mass.
They manned a table and passed out information about HPS to those going by.
A special thanks to the festival’s organizers who were nice enough to move the HPS table to a shady spot without even being asked! That was very thoughtful and I know it was appreciated.