Well, Janet didn’t get out of the hospital on Friday after all. She’s developed an infection in her blood. When I called her on Saturday, I thought that she would be very disappointed that she wasn’t out of the hospital. But, she took it very well. She says she knows she’s been through a major procedure, and that it has gone even better than expected. She knew there would be setbacks and if staying in the hospital a few more days and getting IV antibiotics is what she needs to do, then she’s happy to do it. Go Janet! We actually had a nice long talk on Saturday. Janet is making plans. She’s anxious to hold an event to increase awareness of HPS and she’s anxious to get back to work.
Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Comments