Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Monday, June 30, 2008
Janet continues to make progress
I spoke with Janet earlier today. She’s getting anxious. Every day they seem to say that she’s getting out of the hospital, and every day it’s one more day. She’s hoping today will be the big day. Janet sounded great! She’s down to one liter of oxygen at rest, but it may take as long as a month to completely get her off the oxygen.