Chatting on the phone

I talked to Janet this evening. It was so much fun. She always makes me laugh! Tonight Janet’s voice sounded like it did before. She’s down to one liter of oxygen and says she can’t stop smiling. Janet said she spent a lot of the day talking on the phone because it was so good to talk on the phone without getting out of breath. She also went for a walk around the hospital and took some lessons on how to manage her new medication schedule. Her blood sugar is off so she’ll have to take insulin. I’m not sure if that’s a permanent problem or not, but if I had to hazard a guess, I’d say it’s a result of the steroids and other meds she’s probably on. It is so good to Janet. Tonight she’s talking about when she goes back to work.

The other great news is that Janet donated her explanted lung to the NIH and it arrived safely to be used for research. That meant a lot of Janet, and it’s a great gift to all of us. I know I’ve said this before, but tissue donation is important to the research. Sometimes, depending on what sort of tissue it is, it can be helpful and sometimes it isn’t helpful – but it’s always very helpful to at least check and see.

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Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for

The next generation with Hermansky-Pudlak Syndrome

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Help for one of our newest HPS friends

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Living on the frontlines

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