Here's an update on the status of the Genetic Non-Discrimination Act. It actually didn't go for a vote this last week, so if you didn't get around to writing to your member of Congress, it isn't too late. Knock yourself out! Grin! I'm not including the list of supporting organizations. It's interesting, but very long. I can assure you, the Hermansky-Pudlak Syndrome Network's name is on it.
Our colleagues on the Hill tell us that it appears all systems are go for GINA this week – last week, the transportation bill took longer than expected. It might be that the bill on the floor ahead of GINA on Monday will also take a while, but the hope is that GINA can fly once it does hit the floor (probably Tuesday or later, my personal guess – one cannot time the progression of bills accurately).Staffers tell us that your calls and faxes have made the difference – cosponsors are being added every few days (check to see if your senator is a cosponsor - http://thomas.loc.gov/cgi-bin/bdquery/z?d110:SN00358:@@@P), and all Senators are hearing that this issue is a major one for their constituents – we have to keep this level of interest up until passage – so please reach out even further to all of your networks.If your organization is not in the list below, please send your organization’s name to: email@example.com it is time we all stood together – this is a winning team. We welcome nonmedical, non-health organizations as well.Below the list of organizations, you will also find the instructions for taking action and getting your friends, relatives and colleagues to take action.This is extraordinary, my friends, after more than a decade of work, we are about to see the incredible dedication of thousands of people bear fruit. I am awed at your commitment, one and all!
Thanks so much!Sharon (for the steering committee of the Coalition for Genetic Fairness)