Hey gang,
This is the latest from the Genetic Alliance on GINA. I meant to post it yesterday but I was having technology issues.
The Senate may consider the Genetic Information Nondiscrimination Act (GINA) this week! This legislation provides fundamental protections against the misuse of genetic information in health insurance and employment decisions.
We need your support to make sure GINA is successful. Take action in four easy steps:
1) Call Senator Reid at 202.224.3542 and thank him for his support of GINA. Sample script My name is (YOUR NAME) and I am calling to thank Senator Reid for his leadership on the Genetic Information Nondiscrimination Act, or GINA. I would like to encourage him to take swift action to ensure GINAÕs success. T hank you!
2) Call your two senators and ask them to support GINA. You can find their names and contact information at http://geneticallia nce.org/senator. list
Sample script
My name is (YOUR NAME) and I am a constituent of (NAME OF SENATOR). I am calling to ask for (NAME OF SENATOR)'s support for the Genetic Information Nondiscrimination Act, or GINA, and all the procedural motions needed to support this legislation. This legislation provides fundamental protections against the misuse of genetic information in health insurance and employment decision s. It is vital for all Americans to have these basic protections. Thank you!
3) Take this sample letter, personalize it on your own letterhead, and send it to policy@geneticallia nce.org or fax it to 202.966.8553. Both organizations and individuals are encouraged to send letters. The Coalition for Genetic Fairness will collect all the letters and make sure the Senate gets them.
Sample letter
DATE
Dear Senators, I want to encourage you to support the Genetic Information Nondiscrimination Act (GINA) and all the procedural motions necessary to ensure this billÕs success. SHARE ABOUT YOU, YOUR ORGANIZATION AND WHY GINA IS IMPORANT TO YOU.The current lack of federal legal protections against the misuse of genetic information has restricted individualsÕ access to health information and clinical trials. Fear of the misuse of genetic information limits access to genetic tests. Refusal to utilize effective genetic tests hinders the ability of individuals to learn important medical information, which they could use to proactively manage their health. Fear of discrimination also causes a large number of people to opt out of clinical trials. This lack of participation in research has a negative impact on researchers, clinicians, and industry, slowing the research and d evelopment process for targeted drugs and treatments. In order to fully promote personalized medicine and the use of genetic information in healthcare, we must pass GINA. I am encouraged by the SenateÕs record on this legislation, having passed it unanimously in the 108th and 109th Congresses. In addition, the House of Representatives passed GINA by an astonishing 420-3 vote last year. This legislation has strong bipartisan support and the backing of hundreds of organizations including disease advocates, industry, academia, clinicians, researchers, and community groups. Thank you for your leadership on this issue. I look forward to working with you to have GINA pass swiftly. Sincerely, YOUR NAME4) Tell us you are onboard! Email policy@geneticallia nce.org and tell us to include you in the list of GINA's supporters. We will take this list to Capitol Hill to advance GINA! Thank you for making a difference!
I really appreciate this –we'll let you know the plans for the big hurray once GINA passes – we want to celebrate with you!
This is the latest from the Genetic Alliance on GINA. I meant to post it yesterday but I was having technology issues.
The Senate may consider the Genetic Information Nondiscrimination Act (GINA) this week! This legislation provides fundamental protections against the misuse of genetic information in health insurance and employment decisions.
We need your support to make sure GINA is successful. Take action in four easy steps:
1) Call Senator Reid at 202.224.3542 and thank him for his support of GINA. Sample script My name is (YOUR NAME) and I am calling to thank Senator Reid for his leadership on the Genetic Information Nondiscrimination Act, or GINA. I would like to encourage him to take swift action to ensure GINAÕs success. T hank you!
2) Call your two senators and ask them to support GINA. You can find their names and contact information at http://geneticallia nce.org/senator. list
Sample script
My name is (YOUR NAME) and I am a constituent of (NAME OF SENATOR). I am calling to ask for (NAME OF SENATOR)'s support for the Genetic Information Nondiscrimination Act, or GINA, and all the procedural motions needed to support this legislation. This legislation provides fundamental protections against the misuse of genetic information in health insurance and employment decision s. It is vital for all Americans to have these basic protections. Thank you!
3) Take this sample letter, personalize it on your own letterhead, and send it to policy@geneticallia nce.org or fax it to 202.966.8553. Both organizations and individuals are encouraged to send letters. The Coalition for Genetic Fairness will collect all the letters and make sure the Senate gets them.
Sample letter
DATE
Dear Senators, I want to encourage you to support the Genetic Information Nondiscrimination Act (GINA) and all the procedural motions necessary to ensure this billÕs success. SHARE ABOUT YOU, YOUR ORGANIZATION AND WHY GINA IS IMPORANT TO YOU.The current lack of federal legal protections against the misuse of genetic information has restricted individualsÕ access to health information and clinical trials. Fear of the misuse of genetic information limits access to genetic tests. Refusal to utilize effective genetic tests hinders the ability of individuals to learn important medical information, which they could use to proactively manage their health. Fear of discrimination also causes a large number of people to opt out of clinical trials. This lack of participation in research has a negative impact on researchers, clinicians, and industry, slowing the research and d evelopment process for targeted drugs and treatments. In order to fully promote personalized medicine and the use of genetic information in healthcare, we must pass GINA. I am encouraged by the SenateÕs record on this legislation, having passed it unanimously in the 108th and 109th Congresses. In addition, the House of Representatives passed GINA by an astonishing 420-3 vote last year. This legislation has strong bipartisan support and the backing of hundreds of organizations including disease advocates, industry, academia, clinicians, researchers, and community groups. Thank you for your leadership on this issue. I look forward to working with you to have GINA pass swiftly. Sincerely, YOUR NAME4) Tell us you are onboard! Email policy@geneticallia nce.org and tell us to include you in the list of GINA's supporters. We will take this list to Capitol Hill to advance GINA! Thank you for making a difference!
I really appreciate this –we'll let you know the plans for the big hurray once GINA passes – we want to celebrate with you!
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