Many of us in the HPS community are big fans of Angels in Voice, the singing duet of Candice and Crystal Sipe. Candice and Crystal are a real part of HPS history. In the beginning, before there were research protocols underway at the NIH, Donna and Ashley traveled to the NIH every two months for two years. The doctors studied Ashley to determine if HPS was a disorder they could learn enough from to make a difference, and to make it worth spending millions on research.
At the end of those two years Dr. Gahl decided that HPS was a great disease to study because it could teach medicine so much about albinism, vision problems, bleeding problems, digestive problems and lung problems. The NIH could get a lot of bang for its buck by studying HPS.
And so before the natural history study was launched, HPS was featured at NIH Grand Rounds. Donna asked if we could have a few minutes before the scientific session got underway. They allowed it, and Candice and Crystal sang the song I’ll post in a video clip above this entry. It made a real impression and since then HPS has been nicknamed the singing disease. Grin.
Right after they got home from conference, Candice and Crystal found that the copies of their new CD are ready!!! So, the CD is out! I think it’s the best one they’ve done so far. I especially like the song Jerusalem and the girls singing the Lord’s Prayer. It’s wonderful! So, if you’d like your own copy visit www.angelsinvoice.com and get in touch to order a copy!
At the end of those two years Dr. Gahl decided that HPS was a great disease to study because it could teach medicine so much about albinism, vision problems, bleeding problems, digestive problems and lung problems. The NIH could get a lot of bang for its buck by studying HPS.
And so before the natural history study was launched, HPS was featured at NIH Grand Rounds. Donna asked if we could have a few minutes before the scientific session got underway. They allowed it, and Candice and Crystal sang the song I’ll post in a video clip above this entry. It made a real impression and since then HPS has been nicknamed the singing disease. Grin.
Right after they got home from conference, Candice and Crystal found that the copies of their new CD are ready!!! So, the CD is out! I think it’s the best one they’ve done so far. I especially like the song Jerusalem and the girls singing the Lord’s Prayer. It’s wonderful! So, if you’d like your own copy visit www.angelsinvoice.com and get in touch to order a copy!
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