Skip to main content

The next push for GINA

For t hose of you that have been following the long history of the GINA bill, here's the next step should you care to help out. We came so close this summer, and yet Senator Coburn was able to put the kobash on this. Encourage your senators to step up and protect us all from genetic discrimination.

From the Coalition for Genetic Fairness:

Help GINA progress through the Senate Tell the Senate to take action on GINA! We must push GINA to success in the Senate for it to become law. With Senator Coburn's hold on the bill, our best alternative is to get GINA on the Senate floor for a vote. Senator Reid, the Senate Majority Leader can make this happen, but only if he hears about how important GINA is to all Americans.

Help to make GINA one of Senator Reid's priorities. Call his office in Washington, DC at 202-224-3542 and tell his staff that you want GINA (S.358) to come to the floor for a vote.

My name is _____. I am calling to ask Senator Reid to bring the Genetic Information Nondiscrimination Act (S.358) to the Senate floor for a vote. This legislation provides fundamental protections against the misuse of genetic information in health insurance and employment decisions. The bill passed the House in April 2007 by a 420-3 vote and unanimously passed the Senate in the 108th and 109th Congresses. I encourage Senator Reid to take swift action to see this legislation to success.

Sample scriptMaximize your impact! · Follow up your call by faxing a letter to Senator Reid at 202-224-7327. · Contact your own senators and ask them to contact Senator Reid and ask him to bring GINA to the floor.

My name is _____. I am from [name of your town] and I am calling to ask Senator [last name of senator] to encourage Senator Reid to bring the Genetic Information Nondiscrimination Act (S.358) to the floor. This legislation provides fundamental protections against the misuse of genetic information in health insurance and employment decisions. The bill passed the House in April 2007 by a 420-3 vote and unanimously passed the Senate in the 108th and 109th Congresses. I encourage the Senate to take swift action to see this legislation to success.
Sample script· Spread the word. Ask your friends, family, coworkers, and others in your community to make the calls.

Comments

Popular posts from this blog

Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for

The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.

The blog is back, I hope

  What started as a way to share news about HPS and what it is like to live with Hermansky-Pudlak Syndrome has fallen apart badly! There are a lot of reasons for this. Some are related to health. Some are related to time. And some are related to mental health. Finally, the last obstacle was technical. I lost access to my blog. Every time I started to work on regaining access, something interrupted the process and I’d have to start all over again. Before you say it, I know. A blog is so old school. Haven’t you heard of a vlog Heather? Or maybe TikTok? I know my limits. I have a great face for radio. I’m not particularly eager to film myself. When I do, I feel I need to spend extra time putting on makeup or fixing my hair. Yet, often when I have the time to do something like this, it is early in the morning or late at night. I don’t want to “get ready.” I’m having a hard enough time squeezing this in without staging myself. Grin. I’m trying to start with small goals. Right now, I’m h