As I use this blog partly to keep up with my own symptoms, I should probably post I’ve had a few this week. I’m still horribly tired. I wake up tired. I fall asleep on the bus on the way to work. I feel like I need toothpicks to hold my eyes open all day, and then lately have come home to take a two to three-hour nap every evening. I’m so behind on so many things because I’m losing my evening time.
I’ve also had more joint pain than usual this week. It’s not horrible and so I’m not taking anything for it. If I did, I certainly wouldn’t be able to stay awake through the day! I’m afraid to take something at night because it’s just that much harder to get up in the morning.
My joint pain is in all the usual places – my ankles, wrists and fingers – but this week also in my knees. That’s a new one! I feel stiff when I walk around as if I’m much older than my age.
I’ve also got several sores in my mouth right now. They just appeared yesterday and they hurt, but not horribly – just annoyingly so.
And the ding dang sore under my stoma, the one that was finally healed up after a year, is acting up. It isn’t bleeding (thank God) but suddenly instead of the nice pink new skin, it’s back to feeling tender and it looks purple, almost like a bruise.
This morning when I changed my appliance, I didn’t go through the whole routine I’m supposed to go through – which probably won’t help. I woke up late, however, and didn’t have 40 minutes to change the pouch and then 20 to let it “seal” up. I had to catch my bus, so it was rip, bam, plop and run! I know I’m going to pay for that.
My acid reflux has also been acting up and not just at night. It’s been worse during the day too.
All these signs say to me HPS GI stuff is kicking up a bit – but I just can’t take off work right now to do anything about it. It has been a very stressful week, which I’m positive isn’t helping, so perhaps I’ll see if things settle down as life starts to maybe settle down a bit too.
Compared to what so many of my HPS friends are dealing with this week, this stuff is nothing.
I’ve also had more joint pain than usual this week. It’s not horrible and so I’m not taking anything for it. If I did, I certainly wouldn’t be able to stay awake through the day! I’m afraid to take something at night because it’s just that much harder to get up in the morning.
My joint pain is in all the usual places – my ankles, wrists and fingers – but this week also in my knees. That’s a new one! I feel stiff when I walk around as if I’m much older than my age.
I’ve also got several sores in my mouth right now. They just appeared yesterday and they hurt, but not horribly – just annoyingly so.
And the ding dang sore under my stoma, the one that was finally healed up after a year, is acting up. It isn’t bleeding (thank God) but suddenly instead of the nice pink new skin, it’s back to feeling tender and it looks purple, almost like a bruise.
This morning when I changed my appliance, I didn’t go through the whole routine I’m supposed to go through – which probably won’t help. I woke up late, however, and didn’t have 40 minutes to change the pouch and then 20 to let it “seal” up. I had to catch my bus, so it was rip, bam, plop and run! I know I’m going to pay for that.
My acid reflux has also been acting up and not just at night. It’s been worse during the day too.
All these signs say to me HPS GI stuff is kicking up a bit – but I just can’t take off work right now to do anything about it. It has been a very stressful week, which I’m positive isn’t helping, so perhaps I’ll see if things settle down as life starts to maybe settle down a bit too.
Compared to what so many of my HPS friends are dealing with this week, this stuff is nothing.
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