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Welcome NOAH readers!

The National Organization for Albinism and Hypopigmentation (NOAH) has picked up this blog in the blogs section of their Web site. I was very pleased and honored that they asked. I must, however, warn any new readers that, while I’m thrilled that anyone would want to read this blog, my intended audience is the HPS community. HPS is a type of albinism, and thus many of the issues I encounter in life are the same as anyone else with albinism. Because HPS involves other health issues, however, sometimes this blog gets pretty frank about topics that not everyone would talk about in polite conversation.

Non-HPS’ers might be a bit rattled by some entries.

And sometimes entries have nothing to do with albinism, HPS or health. Grin! This is, after all, my personal blog.

I also want to point out that not everyone with HPS has the same types of health problems that I do. There are eight known types of HPS (and probably other types not yet discovered). I have HPS type 1. You can read more about HPS on the NOAH site, or you can visit the HPS Network, a patient advocacy group just for families impacted by HPS, or a handful of other extremely rare related syndromes. Please feel free to e-mail me with any additional questions regarding HPS at hkdawn@yahoo.com – but please put HPS in the subject line. I get a lot of e-mail, and a LOT of spam!
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