Skip to main content

Lost and Found

Don’t worry, I’m not lost. I am, however, having some health issues, life balance issues, major stress issues etc. So, that’s why you haven’t seen much blogging lately.

Today I had to come home early from work, once again, thanks to a “code brown.” We’ll blog about that later. But, while I was laying on my bed, upset and in a bit of pain, I was listening to NPR and heard the most delightful segment on
Talk of the Nation. It helped me calm down.

They were talking about
lost and found items. They interviewed the guy in charge of lost and found at Grand Central Station about all the wacky things people have lost, and the extent to which they’ve gone to find the owners. Another guy was interviewed who has started a magazine called Found that looks like a blast to read. I’m going to have to check it out further. Essentially, his magazine is full of stories about found notes, lost items etc. They were very interesting - some sad and some funny.

If anyone’s interested in little entertaining, human interest reading, I strongly urge you to check out the radio show and the magazine.

It made me think of something I once lost that I would LOVE to find again. Before my blogging days, I kept a journal. When I was first “officially” diagnosed with HPS I recorded it all in my journal. I recorded the day that doctor started asking me the questions that caused me to google Hermansky-Pudlak Syndrome for the first time. I recorded my thoughts during my first trip to NIH. I recorded my thoughts about my first HPS conference. And, wouldn’t you know, just when that particular journal was so full I was almost ready to start a new one, I left it in the seat pocket on a flight. I tried to call the airlines and find it, but to no avail.

Can you imagine finding someone’s journal in the seat pocket on a plane? Most people wouldn’t be able to resist. They’d read it, maybe hoping for a little scandal, something salacious maybe? And instead they’d find this horribly emotional, terrified, story about getting diagnosed with a rare disease. I bet that was a shocker!

So, just in case there’s someone out there that stumbled upon my diary in the seat pocket of an airliner (I think it was a Southwest Airlines flight) – I want it back.

Comments

Popular posts from this blog

Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for

The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.

The blog is back, I hope

  What started as a way to share news about HPS and what it is like to live with Hermansky-Pudlak Syndrome has fallen apart badly! There are a lot of reasons for this. Some are related to health. Some are related to time. And some are related to mental health. Finally, the last obstacle was technical. I lost access to my blog. Every time I started to work on regaining access, something interrupted the process and I’d have to start all over again. Before you say it, I know. A blog is so old school. Haven’t you heard of a vlog Heather? Or maybe TikTok? I know my limits. I have a great face for radio. I’m not particularly eager to film myself. When I do, I feel I need to spend extra time putting on makeup or fixing my hair. Yet, often when I have the time to do something like this, it is early in the morning or late at night. I don’t want to “get ready.” I’m having a hard enough time squeezing this in without staging myself. Grin. I’m trying to start with small goals. Right now, I’m h