First, let me apologise for not blogging more this week. I actually have a lot to say, but am very crunched for time. My boss had her baby on Monday, a little girl of six pounds and 18 inches long. She sounds small, but her mom is tiny. If she’s been any bigger I would have been worried! Grin!
This means that at work it’s just me, our publisher, and our editorial assistant. I’m swamped. I’m going to be at NIH next week, so not only am I doing two jobs, but I’m going to be out a week. And, I ended up spending the better part of yesterday at KUMed for my immunologist appointment. I also finally got to visit Annette.
So, here are just a few updates and teasers…
1. Thanks to everyone for praying for Annette. It means a lot to her. They’ve revised her diagnosis – they now believe she’s probably had leukemia for several months and that indeed there’s probably a genetic link. They believe that instead of AML that she actually has ALL, which involves the lymph nodes. They’ve told her that the bad part of ALL is that it often travels to the brain and causes brain cancer. But, the good news is all the tests they’ve done show no cancer in her brain. She’s started chemo and today they’re putting some kind of port (sorry, didn’t totally catch this part yesterday – I was a little shell shocked) in her chest as well as in her head. They’re going to give some type of chemo drugs right into her head to be sure the cancer doesn’t spread to her brain. They told her that if the cancer doesn’t spread to her brain, they give her a 90 percent chance of being “cured.” But, if the cancer does move to her brain, the odds go down quite a bit. We had a bit of an emotional night.
I think so much has happened in the past week that there hasn’t been time for everything to sink in yet. I’m really hoping I can go see her before I have to leave for NIH.
2. There was a front-page story about HPS in one of the newspapers in Puerto Rico today. The Puerto Rican HPS Family Conference is coming up – so I’ll blog a little about that when I get a chance. I’ll post the story, but Lord knows I can’t read it! Carmen had to translate it for me.
3. I’m very excited as a sports celebrity has shown an interest in helping out the HPS Network! I need to pull together a few things, and then I’ll blog all about it soon.
4. Several of my friends have gotten blog fever in the last two weeks. I am going to add your blogs to the blogroll! I just haven’t had time yet! But, they’re coming!
This means that at work it’s just me, our publisher, and our editorial assistant. I’m swamped. I’m going to be at NIH next week, so not only am I doing two jobs, but I’m going to be out a week. And, I ended up spending the better part of yesterday at KUMed for my immunologist appointment. I also finally got to visit Annette.
So, here are just a few updates and teasers…
1. Thanks to everyone for praying for Annette. It means a lot to her. They’ve revised her diagnosis – they now believe she’s probably had leukemia for several months and that indeed there’s probably a genetic link. They believe that instead of AML that she actually has ALL, which involves the lymph nodes. They’ve told her that the bad part of ALL is that it often travels to the brain and causes brain cancer. But, the good news is all the tests they’ve done show no cancer in her brain. She’s started chemo and today they’re putting some kind of port (sorry, didn’t totally catch this part yesterday – I was a little shell shocked) in her chest as well as in her head. They’re going to give some type of chemo drugs right into her head to be sure the cancer doesn’t spread to her brain. They told her that if the cancer doesn’t spread to her brain, they give her a 90 percent chance of being “cured.” But, if the cancer does move to her brain, the odds go down quite a bit. We had a bit of an emotional night.
I think so much has happened in the past week that there hasn’t been time for everything to sink in yet. I’m really hoping I can go see her before I have to leave for NIH.
2. There was a front-page story about HPS in one of the newspapers in Puerto Rico today. The Puerto Rican HPS Family Conference is coming up – so I’ll blog a little about that when I get a chance. I’ll post the story, but Lord knows I can’t read it! Carmen had to translate it for me.
3. I’m very excited as a sports celebrity has shown an interest in helping out the HPS Network! I need to pull together a few things, and then I’ll blog all about it soon.
4. Several of my friends have gotten blog fever in the last two weeks. I am going to add your blogs to the blogroll! I just haven’t had time yet! But, they’re coming!
Comments
I hope you feel better soon and that your trip to NIH is productive.
Yes, she does - thanks!