Skip to main content

Bah-humbug

One side effect of being so tired all the time is that, well to put it nicely, I tend to get grouchy. If I weren’t trying to be family friendly, I could think of a better word for it. That would pretty much sum up me right now – irritable.

I caught the early bus home from work. Why not? It wasn’t like I was getting anything done.

Blogging is easy. I can blog dead tired, well, maybe not as well as I would if I were awake – but I can fake it. Writing something a bit more technical and dry, or worse trying to edit it, is something different, especially when you’re a bit bleary-eyed.

The problem is compounded now as the once empty cubes surrounding me have been filled up with new employees hired to sell advertising for a new product our company is launching.

Editorial and sales just don’t mix. They aren’t selling my magazine. It isn’t a conflict of interest thing. They are all perfectly nice people. In fact, the two women across the aisle from me I especially like, although I haven’t been able to be very social with them. But, sales people, not surprisingly, sell. They’re on the phone constantly. They chat a LOT. Their cell phones, and their desk phones, ring all day long.

I did once work in a newsroom, and newsrooms tend to be loud, but it’s sort of a dull roar. Everyone is busy all the time and the noises sort of melt together into a kind of white noise. Occasionally you realize the reporter on the other side of you is onto something especially juicy, and you can’t help but get sucked into their conversations – but on the whole that wasn’t bad.

This is different. Because there are only a handful of these sales people, and because the rest of the area is quiet, it’s as if suddenly I’m sharing my cube with other people – as if they’re standing there chatting away right next to me as I’m trying to concentrate.

If I weren’t so tired, I could more easily block it out. But I am tired, and did I mention grouchy?

I’m in the mood to have a tantrum. I feel obligated to take work home because I was so unproductive during the day. But, I’ve got other things to do when I get home besides make up for things I should have accomplished on the clock. I just pray I feel better in the morning.

If I weren’t on the verge of an NIH trip, I’d go get some blood work done. But, since I’m trying to get out of town, I really don’t want to take a half day off to go ask for some blood work.

I’ve got an appointment next week with the immunologist. The last time I saw him it took three and a half hours. I don’t think it will be as long this time, but let’s just say all of my doctor time slots are filled. He and I need to chat about my medications.

I also can’t rule out that it isn’t something in my blood work at all. Given the past few months, heck the past few years, I think I’m entitled to a little mental exhaustion, thank you very much!

Comments

Popular posts from this blog

Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for

The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.

Help for one of our newest HPS friends

As many of you know, I have a google alert set up for all sorts of key terms like albinism, pulmonary fibrosis etc. The following was posted on the blog of a friend of Melanie's. Melanie is one of our newest members of the Hermansky-Pudlak Syndrome family. Unfortunately, like so many she didn't know she had HPS and the lung disease sort of snuck up on her. Melanie will be 26 years old next week. Perhaps some of us would like to contribute to the fund set up to help her and her family for her birthday. Here's the post: Melanie Hernandez, beloved sister and daughter to Pete, Monique, Cookie, and Bugie, has been diagnosed with Pulmonary Fibrosis, a lung disease occurring in people with Hermansky-Pudlak Syndrome, a very rare disease.Hermansky-Pudlak Syndrome (“HPS”) is a genetic metabolic disorder. It is characterized by: Albinism, Vision Impairment, Bleeding Disorder, Inflammatory Bowel Disease and Lung Disease – Pulmonary Fibrosis. With the family’s research and the recollect