Whazup with the video?

I came across this video clip on YouTube. Ben Morrison is a comedian that has Crohn's. The GI issues of Hermansky-Pudlak Syndrome have been on my mind a lot lately. We've had a bit of a GI epidemic lately. Currently we've got Sheena about to have surgery, Karen about to have a scope, Matt recovering and hopefully returning to his internship, and Katy's ongoing problems - just to name a few! Trust me - there are more out there. HPS does involve a Crohn's-like element for about 20 percent of us.

Keeping your sense of humor is incredibly important to being able to live with a chronic illness. I have to admit, sometimes I'm not feeling very ha, ha - but stuff like this helps. I know there are some of you who would choose a few different words here and there - but I liked this!

Comments

Kathryn said…

Thanks for the video. It's been a discouraging day, working with the doctors and some people with NIH. Maybe I'll email you about it, if I feel like talking about it. I'm just tired of everyone with a degree thinking it's in my head and suggesting I need to see a neurologist.

3:52 PM

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Living on the frontlines

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