Skip to main content

Hot, hot, hot!

Once again I’m sitting at Homers. Today Ryan’s computer and the wireless modem have saveme from wasting several hours of time.

I had an appointment to get my hair cut at 11:30 am. I decided to pack up the laptop, go to Homers to have a latte and muffin for breakfast while doing a little work, and then head next door to get my hair cut.

It’s very hot and humid today. The actual temperature is in the 90s, but I have no idea what the heat index must be. The heat and humidity definitely don’t agree with me. While I’ve been feeling really good lately, and having no trouble breathing inside, it seems when I get to walking in this heat I get out of breath very easily.

By the time I arrived at Homers, only about three blocks away from home, I was completely winded. As I ordered my little treat, a latte, my phone rang. It was the hair place. They’d made a scheduling error and couldn’t take me at 11:30. Could I come at 2:00 pm instead?

I really need a haircut. I want it before the big family reunion next weekend, and I can’t just take off on my lunch hour like everyone else. What choice did I have but to agree?

I was annoyed though since I was already just next door. I was tired, and although it’s a short distance, I didn’t want to walk home, start a project, have to stop in the middle, and walk back again in the hottest part of the day.

My mom, the Queen of Clean, is coming this week. I’m up against the clock on getting ready for inspection. I had a schedule to keep. But I knew that if I went home, started cleaning, and then tried to walk back up here in the heat I’d be done for the day. My energy levels are a bit low today and my tummy is upset – so I decided to stay at Homers and work on HPS projects. I’m frustrated because I need to be home getting ready. I’m already planning to take a day off to clean this week – one of my precious days just so I don’t have to listen to the “helpful comments.” I really don’t have time to be sitting here.

I thought I’d maybe go next door for lunch, but I don’t feel hungry. I think it’s the heat. Yuck!

I am pleased with some of the work I’ve been able to finish though. I would have been really mad if I’d ended up just sitting here for several hours.

Comments

Popular posts from this blog

Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for...

Some good news about Pirfenidone

Below is a press release from Intermune, the company that makes Pirfenidone. They have essentially reviewed the various clinical trials going on, and decided that Pirfenidone is safe and well tolerated. That would pretty much go along with what we've observed in the HPS community as well. We have a few folks that have been on the drug since the late 90s and continue to do well. Of course, as a journalist, I do have to say consider the source - but at the same time, as someone in a Pirfenidone trial, it's good to know. Results of Comprehensive Safety Analysis of pirfenidone In IPF Patients Presented At European Respiratory Meeting - Analysis shows safety and tolerability of pirfenidone across four clinical trials - VIENNA, Sept. 14 /PRNewswire-FirstCall/ -- InterMune, Inc. (Nasdaq: ITMN ) today announced that the results of a comprehensive review of safety data from four clinical studies were presented at the 2009 European Respiratory Society Annual Congress in Vienna, Austria...

The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.