Skip to main content

Beware of the pigsty

I’m going through one of those periods where I’m afraid someone will try to be really nice and drop by to visit me. If they did, they’d find a pile of clean, but unfolded clothes on the couch. Dirty dishes are piled in the sink, and clean ones are in the dish washer. There’s a stack of press releases from work I need to go through to decide if we can use any of them in one of the living room chairs. There’s a box of paperwork I’m in the process of sorting as part of my campaign to get rid of some of the boxes in my closets sitting by the TV. The carpet is sorely in need of being vacuumed, and the dust is so thick that even I can see it.

I think if anyone dropped by I’d just pretend I’m not home.

How do people do it? Why is it that everyone else can seem to juggle life, and I’m constantly overwhelmed by it?

Friday I stayed home from work part of the day. During the night Thursday I woke up feeling very sick to my stomach. As I climbed out of bed I vomited right there on my feet. There’s nothing worse than trying to clean up vomit, especially when you’re already feeling queasy. My temperature was 102, and I threw up twice more before morning. Needless to say, I didn’t sleep much.

So, I decided to stay home, at least in the morning, both to get some rest and assure I wouldn’t have a repeat performance on the bus. That would be really embarrassing!

I don’t think it was an HPS moment. A stomach bug has been making its way through our office. Two of my co-workers had it last week and I thought I’d managed to escape it. I guess not.

I wanted to go into work though, because Ryan and Matt had shipped my computer and I wanted it for the weekend. So, still a little feverish I took a cab into work and then took the bus home.

As excited as I was to get the computer, I didn’t feel up to playing with it Friday night. Today, however, I got to experiment a bit. It will take a little more getting used to than I had imagined. But, I was thrilled to be able to work on the HPS newsletter (a project that is now six weeks overdue) at the coffee shop. Ahhhh…portability…I’m going to like that!

Comments

Anonymous said…
Glad to hear you got Ryan's computer. Laptops are hard to maneuver even when you have good eyesight, but keep practicing and you'll get comfortable with it.

Julie

Popular posts from this blog

Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for...

Some good news about Pirfenidone

Below is a press release from Intermune, the company that makes Pirfenidone. They have essentially reviewed the various clinical trials going on, and decided that Pirfenidone is safe and well tolerated. That would pretty much go along with what we've observed in the HPS community as well. We have a few folks that have been on the drug since the late 90s and continue to do well. Of course, as a journalist, I do have to say consider the source - but at the same time, as someone in a Pirfenidone trial, it's good to know. Results of Comprehensive Safety Analysis of pirfenidone In IPF Patients Presented At European Respiratory Meeting - Analysis shows safety and tolerability of pirfenidone across four clinical trials - VIENNA, Sept. 14 /PRNewswire-FirstCall/ -- InterMune, Inc. (Nasdaq: ITMN ) today announced that the results of a comprehensive review of safety data from four clinical studies were presented at the 2009 European Respiratory Society Annual Congress in Vienna, Austria...

The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.