I am entirely too knowledgeable about my poo. When I saw the doctor in February and started to complain about GI issues, she explained to me that having an ostomy, my poo wouldn’t be like “normal poo.” I was nice – but in my head I thought, “no kidding – I’ve had an ostomy for 14 years. I’m well aware of what my poo is normally like.”
Monday was a pretty good day. No joint pain, not even a little. In the evening I went to an awesome folk music concert (I’ll blog about that later). On the way my friends and I stopped at a new Hawaiian restaurant in the neighborhood. The food was great! The company was refreshing. It was really nice to get out for a change.
We made our way to the concert a tad late and took some seats in the back. The band started, and I felt it. My pouch was filling up as if someone had turned on a faucet. It pretty much behaved its self the rest of the evening and, after one quick escape to the restroom, we enjoyed the evening.
I got home and went to bed. Within an hour I was awake. Again with the faucet. And again, and again – I barely slept at all because every hour or two I had to get up and “do my thing.” My joints started to hurt so I wasn’t very uncomfortable anyway.
Finally at daybreak I think I fell asleep. I slept right through the alarm and missed the bus. Exhausted, and still having the runs, I decided to cave in and stay home. I figured it would only be a matter of time until I was leaking again anyway and I’d just have to pay a cab home. My stories for the magazine were all in and I could do much of what I needed to do from home.
The leak never appeared, but I spent the day feeling really groggy and sleeping a lot – not sure if that’s from being up all night or from the tummy troubles. I’ve noticed that the extreme fatigue feelings seem to come with the diarrhea.
Once again, it isn’t a problem I’d characterize as severe. I was able to edit some stories and work on a few things from home. But, it was annoying and disrupting to my day.
I know this whining is starting to sound like a broken record, but I hate logging symptoms every day. It makes you concentrate too much on health things during the times when really not much is wrong. But, it’s also important to have a record – especially since this HPS stuff comes and goes and can start out as being so subtle.
If I mention it when it is a problem, then I can go back later and log things. I think that works better.
Monday was a pretty good day. No joint pain, not even a little. In the evening I went to an awesome folk music concert (I’ll blog about that later). On the way my friends and I stopped at a new Hawaiian restaurant in the neighborhood. The food was great! The company was refreshing. It was really nice to get out for a change.
We made our way to the concert a tad late and took some seats in the back. The band started, and I felt it. My pouch was filling up as if someone had turned on a faucet. It pretty much behaved its self the rest of the evening and, after one quick escape to the restroom, we enjoyed the evening.
I got home and went to bed. Within an hour I was awake. Again with the faucet. And again, and again – I barely slept at all because every hour or two I had to get up and “do my thing.” My joints started to hurt so I wasn’t very uncomfortable anyway.
Finally at daybreak I think I fell asleep. I slept right through the alarm and missed the bus. Exhausted, and still having the runs, I decided to cave in and stay home. I figured it would only be a matter of time until I was leaking again anyway and I’d just have to pay a cab home. My stories for the magazine were all in and I could do much of what I needed to do from home.
The leak never appeared, but I spent the day feeling really groggy and sleeping a lot – not sure if that’s from being up all night or from the tummy troubles. I’ve noticed that the extreme fatigue feelings seem to come with the diarrhea.
Once again, it isn’t a problem I’d characterize as severe. I was able to edit some stories and work on a few things from home. But, it was annoying and disrupting to my day.
I know this whining is starting to sound like a broken record, but I hate logging symptoms every day. It makes you concentrate too much on health things during the times when really not much is wrong. But, it’s also important to have a record – especially since this HPS stuff comes and goes and can start out as being so subtle.
If I mention it when it is a problem, then I can go back later and log things. I think that works better.
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