Skip to main content

Health update – feeling better

Just a little brief health update. It’s been a better week. I’ve had no diarrhea, little joint pain and little back pain. I am still having quite a bit of reflux though and that’s keeping me up at night. I don’t think I’ve slept more than an hour or two at a time all week. I am SOOOO TIRED! Have you ever been so tired that you feel like you’re drunk? That’s me! Wasted on exhaustion! And to think that there are people who actually spend a lot of money and work at feeling this oblivious and giddy!

On top of that I freelanced three nights this week. I hated to turn down the money. And, the Network has been a bit on hold this week as Donna’s been under the weather. So, why not? The money comes in handy for all those co-pays!

Needless to say on the days when I work two jobs any hope of a healthy diet, regular exercise or other such things I really do know I need to be doing go out the window. Instead, it’s grab something on the way home from my “real job” before I log onto job two at home. (At least I do all that work from home!)

The trouble is I can’t turn down the money. I need the money.

Comments

Anonymous said…
Hey Heather

I am so glad that you are feeling better, think you and I may be on the same schedule eh. I am too feeling back to my old self and ready to hit that new job and take it by storm on Monday. You get some rest and I hope Donna feels better, pass along my best wishes when you talk to her ok.

Luv ya chickie

Sheena

Popular posts from this blog

Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for

The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.

Help for one of our newest HPS friends

As many of you know, I have a google alert set up for all sorts of key terms like albinism, pulmonary fibrosis etc. The following was posted on the blog of a friend of Melanie's. Melanie is one of our newest members of the Hermansky-Pudlak Syndrome family. Unfortunately, like so many she didn't know she had HPS and the lung disease sort of snuck up on her. Melanie will be 26 years old next week. Perhaps some of us would like to contribute to the fund set up to help her and her family for her birthday. Here's the post: Melanie Hernandez, beloved sister and daughter to Pete, Monique, Cookie, and Bugie, has been diagnosed with Pulmonary Fibrosis, a lung disease occurring in people with Hermansky-Pudlak Syndrome, a very rare disease.Hermansky-Pudlak Syndrome (“HPS”) is a genetic metabolic disorder. It is characterized by: Albinism, Vision Impairment, Bleeding Disorder, Inflammatory Bowel Disease and Lung Disease – Pulmonary Fibrosis. With the family’s research and the recollect