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It’s almost time!

Only a few days left until we’re off to New York for the Hermansky-Pudlak Syndrome Family Conference! There’s a part of me that is very excited, looking forward to seeing all my HPS friends and to hearing all the latest in the research. Then, there’s a part of me thinking about all the details, the board meeting, the nuts and bolts of making something like this run – and I can hardly wait for it to be over. I can’t imagine how Donna and the Oyster Bay team must feel.

Last year I went on Wednesday and stayed at Donna’s house to help get things ready. We stayed up until about 2:00 am before Richard, Donna’s husband, came downstairs and “made” us go to bed. We were up at six the next morning finishing photocopying, putting together packets etc. The Appell house was a hive of activity with volunteers coming and going, things being loaded into trucks to take to the hotel – and all the while we’re trying to remember what’s still there and what has gone and what we’ve forgotten.

I offered to go early again this year, but Donna said she’d rather save one of my vacation days for working on the film project, or going to a medical meeting or something like that. Now that it’s deadline time at work, I’m thankful I didn’t go on Wednesday. Things aren’t going well at work as my feature is STRESSING ME OUT!

It’s funny how the easiest stories can turn out to be the biggest pain in the you-know-what.

So, after working on board meeting stuff all this evening, I’m off to bed. I want to try to be at work by seven.
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