Skip to main content

Kudos for Overland Park City Hall

Well, I’m supposed to be cleaning house and getting ready for my trip, but I’ve been running some errands and I’m tired and just need to sit for a minute – so I thought I’d blog a bit.

If you’ve ever been involved in the world of blind politics, you know there are several different philosophies about how blindness affects daily life, who is really considered “blind” and how we should cope with this disability.

I’ve always fallen into the camp that one should always be extremely careful about asking for society to make adaptations for us. Nothing is free in life. Everything comes with a price. Society, in general, thinks that blind people are helpless and unable to adapt to the sighted world. They say things like, “I just don’t know how you do it. If I closed my eyes I could never do xyz….” What they fail to appreciate is that learning to adapt to low vision or blindness requires learning a set of skills, just like everything else in life. Once those skills are learned not seeing well can be reduced to essentially an inconvenience. Okay, sometimes it seems like a big inconvenience here in suburbia, the big green jail, as I call it. But, we must operate in a world with a bunch of people walking around with their eyes closed, and thinking that this is what it's like to be blind. They're the ones, for example, who sit on the other side of the table in a job interview. They can't imagine how we'd function without a zillion adaptations to our basic living environment.

The problem is programs that adequately teach these skills are few and far between and many blind/low vision people don’t have adequate access to these programs. In my opinion, this ought to be the top legislative issue of the organized blind movement. But, that’s another blog entry.

So, with this background in mind, and keeping in mind that I’d rather eat my shoe than ask for any sort of concession from city hall – I e-mailed the city engineer’s department (the folks in charge of building codes and approving construction projects) about my little problem with the construction projects underway on Metcalf.

Friday I got a response. Two very nice city engineers had a conference call with me to discuss the problem. They were extremely nice, very accommodating, and probably would have been all for beeping streetlights and whatever else if I’d asked for it. But, I don’t want those things. I just want to be able to safely walk down the street without having to take a ¾ of a mile detour to access a grocery store, drug store etc.

They’re going to work on the problem while I’m out of town, talk to the construction projects involved, and see what the time table is and whether they could at least keep a path clear of dangerous debris along the street.

I’m thrilled. I’ve thought a lot about whether my request was reasonable and what sort of a message it sent about the abilities of blind people. I decided that because the inconvenience to me, a tax paying citizen, is so great, and the solution is so small, that it was justified.

And, I must say, I was impressed with the civil servants at Overland Park City Hall. Kudos guys!

Comments

Unknown said…
Way to go City Hall. And way to go Heather. I think this is one "cause" worth fighting for, especially because it sounds like you can get some results.

Popular posts from this blog

Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for...

Some good news about Pirfenidone

Below is a press release from Intermune, the company that makes Pirfenidone. They have essentially reviewed the various clinical trials going on, and decided that Pirfenidone is safe and well tolerated. That would pretty much go along with what we've observed in the HPS community as well. We have a few folks that have been on the drug since the late 90s and continue to do well. Of course, as a journalist, I do have to say consider the source - but at the same time, as someone in a Pirfenidone trial, it's good to know. Results of Comprehensive Safety Analysis of pirfenidone In IPF Patients Presented At European Respiratory Meeting - Analysis shows safety and tolerability of pirfenidone across four clinical trials - VIENNA, Sept. 14 /PRNewswire-FirstCall/ -- InterMune, Inc. (Nasdaq: ITMN ) today announced that the results of a comprehensive review of safety data from four clinical studies were presented at the 2009 European Respiratory Society Annual Congress in Vienna, Austria...

The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.