There have been times these past few weeks when, despite the ever growing mountain of work on my desk, and despite the level of stress I feel about not being more efficient and reliable, I have to surrender. Some of the medications I have to take can make me very drowsy. To try to help the weird feeling I’ve been fighting in my legs for months, the transplant clinic decided to increase one of my medications for neurological pain. My legs don’t hurt. The problem is they don’t anything…hurt, get tingly etc. They feel like your cheek does after you’ve gone in for a filling and the dentist has given you a numbing shot. You can still “feel” in your cheek, but you can’t really, or that filling would hurt like crazy and they’d be peeling you off the ceiling. That’s the way my legs have felt since the end of June, to varying degrees of weirdness. I’m not sure why increasing this medication would make them less numb as opposed to more numb, but I’ll try anything. I had worked to wean myself dow...
Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life