(Note: actually posting this a few days later.) Yesterday it was one year and six months since my single lung transplant. In some ways it feels like yesterday, and in other ways it feels like so long ago. In the beginning, post transplant time starts to take on strange properties. It feels like everything moves so slow. You move slow. You think slow. Everything seems complicated and foreign. You’re so anxious to get your life back. You’ve got all these things you were looking forward to doing after your transplant and it feels like you’ll never get there. There are still things on my post transplant wish list that physically I can’t do, but even now, even a year and a half later, I’m still making progress. There were some complications that slowed things down early on – although my team probably wouldn’t put it that way. They’d tell me to quit comparing my recovery to anyone else; we’re all different and there isn’t a schedule to this. Okie Dokie. Got it – NOT. I’m not wired that way.
Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life