If you live in or near the Delaware area, join Amber Klein and her family and friends as they raise money for the HPS Network. Help them work towards funding the cure! Way to go Amber, Amber's dad, and their whole gang of supporters!!!! Learn more here: https://www.hpsnetwork.org/en/events/2014-06-28/jakes-wayback-burger-hps-benefit
Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
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