Surfing lessons for those who are visually impaired

This is an opportunity frankly I don't know a lot about, but I thought if anyone was in the greater New York area and was interested, they could reach out and investigate this themselves. I'm just sharing the info.

Hello Everyone, Lisa Innella here,

I just wanted to let you know that for the 3rd year in a row Surf for All will be hosting surf lessons for individuals who are blind or visually impaired in Long Beach. You do not have to be registered with Camp Abilities to attend, it is open to anyone who has a visual impairment and IT'S FREE! However, you do need to RSVP to me by July 5th. Spread the word to your friends!

We have had a lot of success with this event in the past and it truly is an amazing experience for everyone who attends. So bring your beach towel and bathing suit and get ready to catch a wave!

THE ATTACHED FLIER HAS ALL OF THE INFORMATION YOU NEED ABOUT THE EVENT.

I hope to see you on the beach on July 11th!
-Lisa
(516) 567-8898

Camp Director
Camp Abilities Long Island
www.campabilitieslongisland.org
P.O. Box 363
Long Beach, N.Y. 11561

Comments

Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for

The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.

Some good news about Pirfenidone

Below is a press release from Intermune, the company that makes Pirfenidone. They have essentially reviewed the various clinical trials going on, and decided that Pirfenidone is safe and well tolerated. That would pretty much go along with what we've observed in the HPS community as well. We have a few folks that have been on the drug since the late 90s and continue to do well. Of course, as a journalist, I do have to say consider the source - but at the same time, as someone in a Pirfenidone trial, it's good to know. Results of Comprehensive Safety Analysis of pirfenidone In IPF Patients Presented At European Respiratory Meeting - Analysis shows safety and tolerability of pirfenidone across four clinical trials - VIENNA, Sept. 14 /PRNewswire-FirstCall/ -- InterMune, Inc. (Nasdaq: ITMN ) today announced that the results of a comprehensive review of safety data from four clinical studies were presented at the 2009 European Respiratory Society Annual Congress in Vienna, Austria

Living on the frontlines

Search This Blog