Many of you in HPSland will know Sandra. She's attended conferences in both the US and Puerto Rico. This year she moved to Boston with her husband and two children in hopes of qualifying for a lung transplant. She very much needs to get on the list. Part of getting on the list is showing you have the capacity to raise money for uncovered needs. If you're able, please help Sandra. Here is her fundraising page: http://www.firstgiving.com/fundraiser/carmencamacho/sandraquinonesungs
I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.
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