New phone-in support group for Chediak-Higashi Syndrome

Parents of those with Chediak-Higashi Syndrome (CHS) will now have the opportunity to chat with one another via telephone once a month. The Jewish Guild for the Blind, in cooperation with the Hermansky-Pudlak Syndrome Network, will host a once-a-month conference call for the CHS community. The call will be moderated by a social worker and will be a free call to those in the United States, thanks to a grant obtained by the Jewish Guild.

The first call will be held Feb. 28th, 2012.

For more information, or to participate in the call, contact: Heather Kirkwood, hkdawn@yahoo.com. Please put “CHS” in the subject line so your e-mail isn’t mistaken as spam.

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Living on the frontlines

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