New Yorkers host Fang-tastic Fundraiser

Supporters of the Hermansky-Pudlak Syndrome Network braved a snow storm to attend the Fang-tastic Night fundraiser in Manhattan on Oct. 29th and raised more than $2,000.

The event, held at Fagolini’s Restaurant, featured a dinner, open bar and raffle prizes including items such as handmade quilts, quilts from Urban Outfiters, AMC movie tickets, and year-long theater passes to the Symphony Space.

Donna Appell gave a short presentation about Hermansky-Pudlak Syndrome and the work of the Network. Ashley Appell and Mervin Hernandez performed two songs for the assembled crowd.

A special thanks to the event’s organizing committee and volunteers including:

Fran Moore

Brenda Lopez

Lisa Koss

Diana Rodriguez

Tracy Zhen

Learn more about the HPS Network at: http://www.hpsnetwork.org/.

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Living on the frontlines

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