Big Weekend in HPSland

This coming weekend is going to be a big one in HPSland. Everyone’s prayers and good thoughts would be much appreciated. We have a large fundraiser this weekend at the OysterFest in Oyster Bay. A team of volunteers will be serving up goodies in the food court for a crowd of more than 100,000. We’re hoping for beautiful weather and lots and lots of business.

Another HPS team will be joining with a team from NOAH at the American Academy of Pediatrics.

They will be making pediatricians aware of albinism, NOAH’s info for new parents, and the importance of awareness/screening for HPS. NOAH also has info on their handout about Chediak-Higashi Syndrome.

Good luck to both teams!!! I wish I could be with all of you!

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Ratner's Cheesecake

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Living on the frontlines

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