This last week we added one new person to the HPS patient registry. That puts us at 80 to go on this year's Hundred People Search challenge! We, of course, also have a stack of new people from the conference, but they still have to be processed. Some don't have a confirmed diagnosis. Others might not be new to the registry, so we don't count them, etc. I will post more about Puerto Rico over the next few days, probably mostly pictures until I get home and have some time to write.
Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
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