Skip to main content

Health Update

Notice: this entry will contain frank information. Read at your own risk.

Last night, today and tonight have been particularly bad health days. I'm doing a horrible job of tracking my fatigue for Kevin, but to be honest, I've been too busy dealing with GI stuff - no wonder I'm tired. My sleep patterns are completely out of whack. If you lived in my shoes, yours would be too.

Last night about 2:00 am I started having extreme abdominal pain. These cramps were like cramps I haven't had for years. I honestly was debating about going to the ER because they were so severe. I was also having horrible runs, as though someone had just turned on a faucet. But, the output didn't look bloody at all - instead it's more of a yellow color - very odd.

This morning I started my time of the month. Since getting the IUD, this is very unpredictable as it only happens every few months and never on a schedule. It's been a welcome change for me! I was relieved to at least know the reason for the cramping. In the morning it seemed to get better, but as the afternoon came on the horrible cramps returned. I got very little done today.

This evening I've given in to tucking into my stash of big dog pain killers. Tylenol makes absolutely no difference.

I'm particularly concerned because I'm supposed to travel soon. I have tons to do which I'm having a hard time donig, and well, this just needs to stop!
Labels:

Comments

Post a Comment

Popular posts from this blog

Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for
1 comment
Read more

The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.
Post a Comment
Read more

Some good news about Pirfenidone

Below is a press release from Intermune, the company that makes Pirfenidone. They have essentially reviewed the various clinical trials going on, and decided that Pirfenidone is safe and well tolerated. That would pretty much go along with what we've observed in the HPS community as well. We have a few folks that have been on the drug since the late 90s and continue to do well. Of course, as a journalist, I do have to say consider the source - but at the same time, as someone in a Pirfenidone trial, it's good to know. Results of Comprehensive Safety Analysis of pirfenidone In IPF Patients Presented At European Respiratory Meeting - Analysis shows safety and tolerability of pirfenidone across four clinical trials - VIENNA, Sept. 14 /PRNewswire-FirstCall/ -- InterMune, Inc. (Nasdaq: ITMN ) today announced that the results of a comprehensive review of safety data from four clinical studies were presented at the 2009 European Respiratory Society Annual Congress in Vienna, Austria
Post a Comment
Read more