HPS Network presents at Soundview Health Clinic

The HPS Network presented to the medical staff at Soundview Health Clinic in the Bronx on Feb. 24th. The clinic serves a heavily Puerto Rican population. Donna Appell explained the ins and outs of Hermansky-Pudlak Syndrome and the services the HPS Network can offer patients.

The Network served lunch to the assembled medical staff, thanks to the quick work of Marie DelVecchio, who put together lunch for 30 with only a day’s notice and brought it to the clinic.

Brenda Lopez, Leticia Colonio and Heather Kirkwood were also on hand to answer questions about HPS and allow physicians to observe the nystagmus in their eyes and the variations in their coloring.

The Soundview clinic staff showed a great amount of interest in HPS and expressed a willingness to do whatever they could to help the HPS community.

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Ratner's Cheesecake

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Living on the frontlines

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