It's been a while since we've had an update. I think HPS testing slows down over the holidays. Most people are enjoying the season and don't want to be tested.
We did have a new member join us this week - so that puts us at 32 more to go for the Hundred People Search this year. We were ahead of schedule, but now we're running behind.
In recent weeks I've met a few HPS'ers on Facebook that are not registered with the Network. Even if you don't want to be involved, it is critically important that you sign up for the patient registry. It's totally private.
We have to prove to the research world that we are out here and we need help.
We also can't tell you about any new developments or trials that might benefit you if we don't know who you are.
Please, if you're out there and you haven't registered with the HPS Network, stand up with us and be counted.
We did have a new member join us this week - so that puts us at 32 more to go for the Hundred People Search this year. We were ahead of schedule, but now we're running behind.
In recent weeks I've met a few HPS'ers on Facebook that are not registered with the Network. Even if you don't want to be involved, it is critically important that you sign up for the patient registry. It's totally private.
We have to prove to the research world that we are out here and we need help.
We also can't tell you about any new developments or trials that might benefit you if we don't know who you are.
Please, if you're out there and you haven't registered with the HPS Network, stand up with us and be counted.
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