Skip to main content

Help the HPS Network earn $5,000 in the next 24 hours

Our friends at iGive are having a membership push for the next 24 hours - until midnight central time tomorrow Dec. 17th. If you don't already belong to iGive, go to their site at the link below, join, and do a single search using their search engine. We get $1 for every person that does this, up to $5,000. Please copy and help get the word out! No purchase is necessary. It's a pretty easy fundraiser if we mobilize quickly and everyone follows through.

We have another fundraising opportunity. For every new person that joins iGive with the link below and does a single search on their search engine, we'll get $1 up to $5,000. Please help us. No purchase is necessary. Please help us get the word out - we only have a short window. This letter exiplains how it works:
Thanks for helping us!
Hi Heather,
We know that many causes have had a hard year, so we'd like to try something new tohelp Hermansky-Pudlak Syndrome Network that requires your participation, but is free and definitely easy.
iGive.com is going to attempt to donate $5,000 in just 24 hours to Hermansky-Pudlak Syndrome Network and other causes. For each person who joins iGive using the special link below and does just one web search on our site between now and noon Thursday, we'll give Hermansky-Pudlak Syndrome Network a dollar.
5,000 new members, $5,000. No purchase necessary.
Of course, if they search more (or buy something) they'll earn even more money for Hermansky-Pudlak Syndrome Network.Right now, we're donating $.02 per search and a bonus $5 for that first purchase plus the usual percentage.
Here's where you come in. The only way Hermansky-Pudlak Syndrome Network will get new supporters and that free $1 (or more) is if you invite them. Send your friends, family, and colleagues the following link in an e-mail, tweet it, do a Facebook posting, put up posters, shout from mountain tops (you know the drill) and let them know you think Hermansky-Pudlak Syndrome Network is pretty cool and deserves their support, especially since it's free! You can even just forward this e-mail.
This is the link:
http://www.igive.com/welcome/warm_reg_promo.cfm?m=427355 We're really proud of our search capability, powered by Yahoo! We've made tons of improvements over the past four months, so we want lots of people to try it out and put it to the test. If they keep on searching or shopping after testing us out, so much the better for Hermansky-Pudlak Syndrome Network and iGive.com.
The details: - Offer active between now and 11:59 a.m., December 17, 2009 (Chicago time). - New members only (never have been an iGive member previously). All the normal rules of membership, searching, and purchasing apply, our site has the details. - Once we've given away $5,000, the offer ends.
That's it. Don't forget to try our search yourself (
http://isearch.igive.com). You may need to login first.
From our families to yours, we hope you have a great holiday season.
Yours,
Robert N. GrosshandlerFounder

Comments

Popular posts from this blog

Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for

The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.

Some good news about Pirfenidone

Below is a press release from Intermune, the company that makes Pirfenidone. They have essentially reviewed the various clinical trials going on, and decided that Pirfenidone is safe and well tolerated. That would pretty much go along with what we've observed in the HPS community as well. We have a few folks that have been on the drug since the late 90s and continue to do well. Of course, as a journalist, I do have to say consider the source - but at the same time, as someone in a Pirfenidone trial, it's good to know. Results of Comprehensive Safety Analysis of pirfenidone In IPF Patients Presented At European Respiratory Meeting - Analysis shows safety and tolerability of pirfenidone across four clinical trials - VIENNA, Sept. 14 /PRNewswire-FirstCall/ -- InterMune, Inc. (Nasdaq: ITMN ) today announced that the results of a comprehensive review of safety data from four clinical studies were presented at the 2009 European Respiratory Society Annual Congress in Vienna, Austria