This is just a brief update for record keeping. I think I need to go get some blood work done. My sleep patterns are all out of wack, but even when I'm awake, I seem to only be productive about five hours a day. I get up at a normal time and fall asleep at the table, or at my desk. I don't feel sick, although my asthma and joints seem flared up. I just feel overwhelmingly tired. That's partly why I'm so behind on blogging!
I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.
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