Silvia, an HPS mom from North Carolina, reports that she shared HPS brochures with her daughter's vision teacher. The vision teacher reported that she has several other students with ocular albinism of Puerto Rican background. Since we know that about five of every six people on Puerto Rican background with albinism have HPS type 1 or 3, the likelihood some of those other kids also have HPS is pretty high. Hopefully their families will follow through with HPS testing. If not, at least they are now aware of the syndrome should any complications develop. Silva also shared brochures with her local doctor's office. Way to go!!! That's how we'll get the word out!
Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for...
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