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Our Hermansky-Pudlak Syndrome allies

This photo was taken at the PAR Symposium. This is different than the Better Breathing PAR event that was open to patients. This was an afternoon-long symposium open to doctors or other American Thoracic Society members. Every year the Public Advisory Roundtable organizes a scientific symposium of its own. This year the topic was pulmonary fibrosis. Several researchers presented research findings about pulmonary fibrosis. Dr. Gochiuco, our doctor from the NIH, gave a presentation on what they've learned so far about the lung disease of Hermansky-Pudlak Syndrome. It was a great exposure opportunity for us because several of the world's experts on pulmonary fibrosis were in the room and heard it.

Here, Dr. Gochiuco poses with two past presidents of the American Thoracic Society. On the left is Dr. Martin. It was his vision that started PAR and incorporated patient voices into the inner workings of the American Thoracic Society. It was pretty innovative of him and has meant a lot to us. On the right is Dr. Ingbar, the immediate past president of ATS who helped organize the symposium with Donna.

This year Dr. Gochiuco was presented with an award named after Dr. Martin, so getting the pic of her with him was pretty symbolic.

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