After Chicago our little outreach team went on to San Diego for the International American Thoracic Society Annual Meeting. This year there were more than 14,000 lung doctors and researchers at the event. It was a good year for Hermansky-Pudlak Syndrome as we had several high profile exposures during the course of the week.
I"m not gonig to blog about them all in order because my notes are everywhere and I really want to get them blogged about before they are no longer fresh in my mind.
It was a great, great trip for us. Hermansky-Pudlak Syndrome is definately on the map of the American Thoracic Soceity.
Imagine that only five or six years ago Donna and Marie attended the show for the first time knowing no one. We couldn't even afford a booth that trip, so these two HPS moms sat in chairs next to a poster about HPS trying to get someone's attention. I think it worked.
I"m not gonig to blog about them all in order because my notes are everywhere and I really want to get them blogged about before they are no longer fresh in my mind.
It was a great, great trip for us. Hermansky-Pudlak Syndrome is definately on the map of the American Thoracic Soceity.
Imagine that only five or six years ago Donna and Marie attended the show for the first time knowing no one. We couldn't even afford a booth that trip, so these two HPS moms sat in chairs next to a poster about HPS trying to get someone's attention. I think it worked.
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