HPS Network launches new Web site

Today the HPS Network launched its new Web site at www.hpsnetwork.org. The site features updated medical information as well as the ability to host constantly updated news about the activities of the Network.

We have launched what is essentially the shell of the new site. More features will be added and translations completed in the coming months. But, because the old site was becoming outdated, we felt the need to at least launch the most critical sections now.

Come back often to see updates!

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The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.

Ratner's Cheesecake

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The blog is back, I hope

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Living on the frontlines

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