Skip to main content

Genes - it's an all-in-the-family effort

Below is a message I got from Sharon Terry, President of the Genetic Alliance. The Genetic Alliance, in cooperation with some other groups, has a family history project underway. The idea is that you and your doctor can much better target preventative care and identify other problems sooner by knowing your family history.

If you've ever had any interest in documenting your family's medical history etc. here is a call-in number Thursday night to help you get started. Although the PSA and the phone bank is local to the Washington DC area, anyone can call the number.

Here's the info if you're interested:

Hello everyone,

Did you know that there are steps you can take to prevent health conditions, simply by knowing your family’s health history? Most Americans don’t! That’s why Genetic Alliance and The American Society of Human Genetics, in partnership with WJLA-TV ABC 7 (the local ABC affiliate in Washington, D.C.), launched a Family Health History Public Service Announcement (PSA) Campaign to raise awareness about the importance of knowing your family’s health history and sharing it with your healthcare providers and relatives.

Call the live Family Health History Phone Bank at 703-647-1533 to speak with healthcare professionals during WJLA-TV ABC 7’s local evening news program from 5:00-6:30 p.m. on Thursday, January 29, 2009. Health and wellness experts will be on the line to answer any of your questions about family health history, from how to collect it to how you can use the information to improve your family’s health.

Knowing your Family Health History is a first step toward a healthier, happier you! Please forward this message to your family, friends, neighbors, co-workers, and healthcare providers in the Washington, D.C. area! For more information about the Family Health History Campaign, visit: www.talkhealthhistory.org <http://www.talkhealthhistory.org/> or wjla.com <http://cfc.wjla.com/> , keyword "family"

Best regards,
Sharon

*The Family Health History Live Phone Bank is brought to you by Aetna, The American Society of Human Genetics, F.O.R.C.E., and Genetic Alliance.

Comments

Popular posts from this blog

Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for

The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.

Some good news about Pirfenidone

Below is a press release from Intermune, the company that makes Pirfenidone. They have essentially reviewed the various clinical trials going on, and decided that Pirfenidone is safe and well tolerated. That would pretty much go along with what we've observed in the HPS community as well. We have a few folks that have been on the drug since the late 90s and continue to do well. Of course, as a journalist, I do have to say consider the source - but at the same time, as someone in a Pirfenidone trial, it's good to know. Results of Comprehensive Safety Analysis of pirfenidone In IPF Patients Presented At European Respiratory Meeting - Analysis shows safety and tolerability of pirfenidone across four clinical trials - VIENNA, Sept. 14 /PRNewswire-FirstCall/ -- InterMune, Inc. (Nasdaq: ITMN ) today announced that the results of a comprehensive review of safety data from four clinical studies were presented at the 2009 European Respiratory Society Annual Congress in Vienna, Austria