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100 People Search update

This week we added one new person to the database of people with Hermansky-Pudlak Syndrome - so that leaves us 39 left to find on the 100 People Search! We need to pick up the pace if we're going to find them by conference. But, consider this - we have 60 newly diagnosed HPS'ers in about a 10-month period - that's 60 people who now at least know their bleeding risks and have a shot at preventative care as well as new therapies.
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