Here's the update for the week - we added one new HPS'er to the registry. So, we've got 51 more to find to meet our outreach goal for the year - on the verge of halfway! And just to show you how the success of outreach efforts aren't always felt immediately, our new HPS'er lives on the mainland USA - but was referred to us after her mother learned of the HPS Network through publicity in Puerto Rico. So, kudos to HPS Puerto Rico!
I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.
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