Skip to main content

Dennis Moore, founding member of NOAH, passes away

The following item was on the NOAH blog this morning. For readers who read this blog directly on my Website instead of on NOAH"s Website, I thought I would repost this for you. Our condolences to Mr. Moore's family.

From the Desk of NOAH
Dennis Moore, NOAH founding member, passes away at age 59.

NOAH was saddened last week by the news of the death of one of the organization’s founding members.

Dennis Moore, 59, of Fairless Hills, Pa., passed away on Tuesday, July 22, 2008. Mr. Moore, who is the father of NOAH co-founder Lee Laughlin, was one of a small group of people who met in Philadelphia in October of 1982 for a one-day albinism workshop. It was from a seed planted at that workshop and a dinner before it that NOAH grew into the world’s premier support organization for the albinism community.
Mr. Moore had been in poor health as of late and was unable to attend NOAH’s 25th anniversary celebration in Philadelphia this past November. NOAH recognized Mr. Moore’s role as a founder with the presentation of a book clock.

“We all owe Dennis and the other NOAH founders a debt of gratitude for turning ideas into action,” said NOAH President Mike McGowan.
We ask that you keep Mr. Moore’s family in your thoughts and prayers.

Published Jul 29 2008, 09:06 PM by Brendan Cosgrove
Labels:

Comments

Post a Comment

Popular posts from this blog

Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for
1 comment
Read more

The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.
Post a Comment
Read more

Some good news about Pirfenidone

Below is a press release from Intermune, the company that makes Pirfenidone. They have essentially reviewed the various clinical trials going on, and decided that Pirfenidone is safe and well tolerated. That would pretty much go along with what we've observed in the HPS community as well. We have a few folks that have been on the drug since the late 90s and continue to do well. Of course, as a journalist, I do have to say consider the source - but at the same time, as someone in a Pirfenidone trial, it's good to know. Results of Comprehensive Safety Analysis of pirfenidone In IPF Patients Presented At European Respiratory Meeting - Analysis shows safety and tolerability of pirfenidone across four clinical trials - VIENNA, Sept. 14 /PRNewswire-FirstCall/ -- InterMune, Inc. (Nasdaq: ITMN ) today announced that the results of a comprehensive review of safety data from four clinical studies were presented at the 2009 European Respiratory Society Annual Congress in Vienna, Austria
Post a Comment
Read more