Janet Perez is an HPS'er that lives in the Chicago area. Some of you may know her from the HPS adults listserv. She was diagnosed with Hermansky-Pudlak Syndrome rather late having, unfortunately, never heard of it or it's potential complications. By the time we met Janet, it was too late for her to participate in the research at NIH. She is currently listed as critical on the lung transplant list and has already had one "trial run" for a new set of lungs.
Lung transplants aren't easy, and they aren't cheap. Janet and her family are raising money to help with expenses not covered by insurance. I have added a widget to the side of this page for her online fundraiser. As you can see, it does cut off a bit, like some of my other items on the side of the page - yet no matter what I do in the HTML code to fix the size, this keeps happening. I don't want to delay getting Janet's information up while I figure it out.
I've never actually met Janet, but we've talked on the phone many times. I can hardly wait to meet her in person. She has such a great sense of humor. I never talk to her where she doesn't make me laugh. Janet has always been a very active person and it's so frustrating for her now to be tied to oxygen and feel so tired at the most basic of tasks. She can hardly wait to get her new lungs.
You can also check out Janet's Web page at: http://www.janetsfundraiser.com. Every little bit helps!
Lung transplants aren't easy, and they aren't cheap. Janet and her family are raising money to help with expenses not covered by insurance. I have added a widget to the side of this page for her online fundraiser. As you can see, it does cut off a bit, like some of my other items on the side of the page - yet no matter what I do in the HTML code to fix the size, this keeps happening. I don't want to delay getting Janet's information up while I figure it out.
I've never actually met Janet, but we've talked on the phone many times. I can hardly wait to meet her in person. She has such a great sense of humor. I never talk to her where she doesn't make me laugh. Janet has always been a very active person and it's so frustrating for her now to be tied to oxygen and feel so tired at the most basic of tasks. She can hardly wait to get her new lungs.
You can also check out Janet's Web page at: http://www.janetsfundraiser.com. Every little bit helps!
Comments