Mark your calendars now! The third annual HPS Family Conference Puerto Rico will be held Aug. 23 at the Coliseum Pachin Vecins in Ponce. We’ll pass along more information as we get it. Start planning to be there and hear the latest on HPS research as well as have a chance to network with other affected families.
Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
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